ME/CFS
Severe → somewhat better
Bedbound with ME/CFS after exercise crash, now somewhat better with good and horrible days
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
hearing your story did make me lean a little more into ME/CFS as something worth looking into
In context ↗ - At worst: Severe
I was basically bedbound for close to two months straight
In context ↗ - Now: Somewhat better
Some days are okay, some days are horrible, but I’m definitely not back to where I was before.
In context ↗
Summary
Alpine 46768's symptoms got severely worse a little over a year before writing. Told by a cardiologist that they had dysautonomia and exercise would help, they went to the gym daily for months and crashed, bedbound for nearly two months. They later said they had not fully recovered, with good and horrible days, and that iron brought their ferritin up without easing their fatigue.
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What they tried
Their words about each treatment
- gym exercise every day · Much worse
I pushed myself, hard, thinking it would eventually make me better. ... I had probably one of the worst crashes or episodes of my life.
In context ↗ - heavy dose iron · No change
still had the same symptoms. And now that it’s improved again, I still feel just as bad
In context ↗ - IUD · Not said
I got an IUD to reduce periods
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about a year before May 2026 | symptoms got severely worseMy symptoms got severely worse probably a little over a year ago nowIn context ↗ | Not stated |
| a few months into daily gym exercise | crashed after months of daily gym exercise, bedboundI was basically bedbound for close to two months straight.In context ↗ | Severe |
| 2026-05-25 | partly out of the crash, good days and horrible daysSome days are okay, some days are horrible, but I’m definitely not back to where I was before.In context ↗ | Moderate |
Adverse events
- Everyday exercise and activity“after a few months of that I had probably one of the worst crashes or episodes of my life. I was basically bedbound for close to two months straight.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I do have dysautonomia / orthostatic hypotension
In context ↗ - Post-exertional malaise
after a few months of that I had probably one of the worst crashes or episodes of my life
In context ↗ - Anxiety & low mood
the part about thinking it was depression
In context ↗