ME/CFS
Outcome unclear
ME/CFS with temperature swings, events managed with precautions and an electric blanket
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
I rest a lot before and after. I choose assigned seats only, park in disabled parking
In context ↗
Summary
A person with ME/CFS described going to events only with precautions: a cane, disabled parking, earplugs, compression socks and gloves, electrolyte tablets, and a lot of rest before and after. They could not regulate their temperature and kept feeling hot then cold, and found an electric blanket with ten settings helpful for this.
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What they tried
Also tried
Their words about each treatment
- electric blanket · Helped
My electric blanket. It’s soft, and it’s also so helpful to have ten different settings for when I can’t really regulate my temperature and keep feeling hot then cold.
In context ↗ - rest a lot before and after · Not said
I rest a lot before and after.
In context ↗ - electrolyte tablets · Not said
electrolyte tablets (packets to throw in some water)
In context ↗ - compression socks and gloves · Not said
compression socks and gloves
In context ↗
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I can’t really regulate my temperature and keep feeling hot then cold
In context ↗