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ME/CFS Mild → no benefitIll for 8 years

ME/CFS: near-debilitating fatigue and insomnia, adrenal supplements no help

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
8 years
Last post
Nov 2020
In their words
  • Condition: ME/CFSI'm a weightlifter with chronic fatigue In context ↗
  • At worst: MildI'm able to struggle through my work days and even maintain my heavy weightlifting at the gym. In context ↗
  • Now: No benefitI am now horribly fatigued. This has been ongoing for the past few years since my sleep improved. In context ↗
  • Began after: stress or burnoutI suffered for about 8 years of brutal insomnia fueled by an anxiety disorder. In context ↗
  • Says they never had: Post-exertional malaiseI don't have any post-exertional crashes.
Read from 5 of their posts and comments; links to the 4 this page draws on

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Summary

drakes8887, a weightlifter, described about eight years of brutal insomnia fueled by an anxiety disorder, followed by several years of near-debilitating fatigue that made mornings very hard. They overcame the anxiety through therapy while their sleep gradually improved, and they tried adrenal supplements without relief from the fatigue. They could still work and lift weights, had no post-exertional crashes and normal bloodwork.

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What they tried

Their words about each treatment
  • therapy · HelpedIn my case it was fixable through therapy. In context ↗
  • light box · Helpeduse a light box to strengthen your circadian rhythm In context ↗
  • magnesium · Helpedtake supplements that help with relaxation, such as magnesium In context ↗
  • melatonin · Helpedlow-dose (1 mg) melatonin In context ↗
  • adrenal supps · No changeI'm taking adrenal supps anyway and no luck so far. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered7 y7.2 y7.5 y7.8 y8 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
about 20128 years of brutal insomnia driven by anxietyI suffered for about 8 years of brutal insomnia fueled by an anxiety disorder. In context ↗Not stated
~2019overcame anxiety and insomnia through therapyMy sleep improvement was gradual over the course of about one year. In context ↗MildCBT and psychotherapy
~2020severe unrelenting fatigue despite good sleepI am now horribly fatigued. This has been ongoing for the past few years since my sleep improved. In context ↗Mild
2020-11-03still chronically fatigued but working and weightliftingI'm able to struggle through my work days and even maintain my heavy weightlifting at the gym. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI suffered for about 8 years of brutal insomnia fueled by an anxiety disorder. In context ↗
  • Anxiety & low moodI've since overcome my anxiety and sleep problems In context ↗

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