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ME/CFS No benefitIll for 17 years

Sick with ME/CFS and severe CPTSD, on disability, trying JournalSpeak

Condition
ME/CFS
At worst
Not stated
Ill for
17 years
Last post
May 2025
In their words
  • Condition: ME/CFSI've been sick and on disability since 2008. In context ↗
  • Now: No benefitI have tried journaling many times and it makes me worse. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user in r/mecfs said they had been sick and on disability since 2008, with many health problems and severe CPTSD. In May 2025 they were just starting JournalSpeak, a journaling method, after ordinary journaling had repeatedly made them worse. They found it incredibly hard and worried that revisiting past trauma could make them sicker.

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What they tried

Their words about each treatment
  • journal speak · Not saidI am just dipping my toes in the water of journal speak. ... I have tried journaling many times and it makes me worse. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
2008became ill and eventually went on disabilityI've been sick and on disability since 2008. In context ↗
—journaling repeatedly made them worseI have tried journaling many times and it makes me worse. In context ↗
2025-05-21still ill, just starting JournalSpeakI am just dipping my toes in the water of journal speak. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI have tried journaling many times and it makes me worse. In context ↗

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Asking aboutPond 45862’s story

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