ME/CFS since 1982, remissions then mostly housebound, dip after Pfizer
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 43 years
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I've had ME/CFS for almost 40 years.
In context ↗ - At worst: Moderate
Currently moderate to severe, mostly housebound. I can work on my computer 1-2 hours per day (mostly accounting).
In context ↗ - Now: Relapsed
A lot of ups and downs and even two remissions, but the last one was in 2002. I’m currently mostly housebound but still manage somehow to work up to 2 hours a day.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Lagoon 65107 has had ME/CFS since 1982, nearly 43 years, starting as a comparatively mild case; they think resting then might have allowed full recovery, but they kept pushing. Two remissions occurred, the last in 2002, with ups and downs throughout. By 2021 they were mostly housebound, doing computer work 1-2 hours a day, and remained so in late 2024. After a first Pfizer dose they had a two-week dip with allergic-type symptoms and more POTS.
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What they tried
What they credit
Also tried
Their words about each treatment
- kept pushing myself as hard as I possibly could · Worse
I was very ambitious and kept pushing myself as hard as I possibly could
In context ↗ - naturopaths · Helped
I rely on naturopaths, acupuncturists, and ayurvedic doctors to help keep me going.
In context ↗ - Pfizer vaccine · Worse
After the first dose, I noticed a dip in energy along with some unusual allergic-type symptoms and an increase in POTS that lasted for about two weeks
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 1982 | ME/CFS began as a comparatively mild caseI've had ME since 1982 ... I initially had a comparatively mild case | Mild |
| — | recurring one- to two-week crashes, barely able to get out of bedSometimes I'll feel like I'm dying and barely able to get out of bed for a week or twoIn context ↗ | Severe |
| 2002 | second remission, the last oneeven two remissions, but the last one was in 2002In context ↗ | Not stated |
| 2024-12-23 | still mostly housebound, working up to 2 hours a dayI'm currently mostly housebound but still manage somehow to work up to 2 hours a day.In context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“After the first dose, I noticed a dip in energy along with some unusual allergic-type symptoms and an increase in POTS that lasted for about two weeks.” In context ↗ Side effects
- COVID vaccination as treatment“After the second dose, there were some mild symptoms, but really barely noticeable in the context of this illness.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
an increase in POTS that lasted for about two weeks
In context ↗ - Mast cell (MCAS) & allergies
some unusual allergic-type symptoms
In context ↗
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