ME/CFS
Severe → no benefit
Severe ME/CFS early on, no improvement from beta blockers
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
Every single interaction with the medical system — bar home visits from a doctor who knew what ME was and saw it biomedically — have worsened my illness.
In context ↗ - At worst: Severe
my first couple years of being severe I cried quite a bit
In context ↗ - Now: No benefit
Every single interaction with the medical system — bar home visits from a doctor who knew what ME was and saw it biomedically — have worsened my illness.
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Kestrel 71414 has ME/CFS, severe in the first couple of years and crying often while coming to terms with it. One treatment never worked for them, beta blockers lowered their heart rate without making them feel better, and the Visible app helped more than a Fitbit. Every medical-system interaction except home visits from a doctor who knew ME has worsened their illness, and crying can bring on PEM.
Ask Miruvor AI
What they tried
Their words about each treatment
- visible app · Helped
try the visible app, made by LC and ME researchers, its helped much more than my Fitbit.
In context ↗ - Fitbit · Not said
its helped much more than my Fitbit.
In context ↗ - LDN · No change
It never worked for me.
In context ↗ - Beta Blockers · No change
Beta Blockers lower it but it doesn’t make me feel any better.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| first couple years | severe ME/CFS, crying often in the first couple of yearsmy first couple years of being severe I cried quite a bitIn context ↗ | Severe |
| 2026-05-25 | still ill; says medical-system interactions keep worsening the illnessEvery single interaction with the medical system — bar home visits from a doctor who knew what ME was and saw it biomedically — have worsened my illness.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It can make me crash. ... Though of course can lead to PEM.
In context ↗ - Heart symptoms & palpitations
yeah i’m 90ish rawdogging it. high 80s with beta blocker.
In context ↗