ME/CFS
Outcome unclear
ME/CFS with anxiety and OCD, using a bed-based toileting device and trying ERP
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2025
In their words
- At worst: Severe
I do sit up to use it and kind of kneel and lean on my headboard for support, if that makes sense.
In context ↗
Summary
A person posting in an ME/CFS forum with anxiety and OCD among other conditions, who describes using a bed-based toileting device, sitting up and leaning on the headboard for support, with no spills, and who attempted ERP for OCD, which went badly. About 14 years ago a starting psychiatric dose of Abilify gave them bad akathisia, and a small dose of Benadryl helped while they came off it.
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What they tried
Their words about each treatment
- ability (Abilify) · Worse
I was on a starting psych dose of ability about 14 years ago and had bad akathisia (couldn’t stay still/internal restlessness).
In context ↗ - Benadryl · Helped
under the guidance of my psych I took a small dose of Benadryl for a few days and it helped get rid of the side effects while I came off it.
In context ↗ - ERP · Worse
I attempted ERP which is the gold standard to treat OCD ... You can imagine how well that went.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | bad akathisia on a starting psychiatric dose of AbilifyI was on a starting psych dose of ability about 14 years ago and had bad akathisia (couldn’t stay still/internal restlessness).In context ↗ |
| 2025-10-23 | using a lidded bedside urinal, sitting up and leaning on the headboardI do sit up to use it and kind of kneel and lean on my headboard for support, if that makes sense.In context ↗ |
Adverse events
- Low-dose Abilify / aripiprazole“I was on a starting psych dose of ability about 14 years ago and had bad akathisia (couldn’t stay still/internal restlessness).” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I have anxiety and OCD, among other things.
In context ↗