Long COVID
Moderate → no benefit
Long COVID with pain, nausea and fatigue, now unable to work; many treatments no relief
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: Long COVID
Possible long Covid, chronic nausea, fatigue and abdominal pain (6-7+ years)
In context ↗ - At worst: Moderate
I haven’t been able to commit to working during the last couple years
In context ↗ - Now: No benefit
my symptoms have been fluctuating, but consistently present
In context ↗ - Began after: glandular fever or EBV
abdominal pain and nausea that persisted after what I thought was a stomach bug. The findings from that were that I had glandular fever (EPV/mono)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 23-year-old man in Australia had chronic abdominal pain, nausea and fatigue since age 16, after a stomach bug and glandular fever, and also reports insomnia. Symptoms cleared between 18 and 20, then returned after gastroenteritis in 2021 and worsened after COVID in April 2022. Many medications, supplements and diets brought no relief, and he was hospitalised for 10 days in mid-2023 at his lowest weight. He now studies online, unable to work.
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What they tried
Also tried
diets· No changelifestyle changes· No changeBotox injection in throat for R-CPD· No changeSpinal epidural for pain block· No changeAbdominal anterior nerve blocks· No changemirtazapine· Not saidphenergan· Not saidescitalopram· Not saidpantoprazole· Not saidantibiotics· Not saidnaturopathic supplements· Not saidondansetron· Not saidparacetamol· Not saidibruprofen· Not saidamitriptyline· Not saidfluoxetine· Not saidsertraline· Not saidclonazepam· Not saidlow dose naltrexone· Not saidPEA· Not saidpropranolol· Not saidmetaclopramide· Not saidmedicinal cannabis· Not said
Their words about each treatment
- mirtazapine · Not said
mirtazapine (15mg)
In context ↗ - phenergan · Not said
phenergan (150mg)
In context ↗ - escitalopram · Not said
escitalopram (10mg)
In context ↗ - pantoprazole · Not said
pantoprazole (40mg)
In context ↗ - antibiotics · Not said
currently taking antibiotics for a suspected UTI
In context ↗ - naturopathic supplements · Not said
multiple naturopathic supplements
In context ↗ - ondansetron · Not said
ondansetron (8mg) when needed
In context ↗ - paracetamol · Not said
paracetamol/ibruprofen when needed
In context ↗ - amitriptyline · Not said
amitriptyline + fluoxetine
In context ↗ - sertraline · Not said
amitriptyline, sertraline, fluoxetine
In context ↗ - low dose naltrexone · Not said
low dose naltrexone
In context ↗ - medicinal cannabis · Not said
medicinal cannabis
In context ↗ - diets · No change
diets, medication and lifestyle changes
In context ↗ - Botox injection in throat for R-CPD · No change
Botox injection in throat for R-CPD (2024)
In context ↗ - Spinal epidural for pain block · No change
Spinal epidural for pain block (2024)
In context ↗ - Abdominal anterior nerve blocks · No change
Abdominal anterior nerve blocks (2024)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 years after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 16 | daily abdominal pain and nausea began after a stomach bug; glandular fever foundabdominal pain and nausea that persisted after what I thought was a stomach bug. The findings from that were that I had glandular fever (EPV/mono)In context ↗ | Not stated |
| age 18 | symptoms settled and he had about two years with no symptomswith a small window of no symptoms from ages 18 to 20In context ↗ | Recovered |
| mid-2021 | symptoms returned and persisted after gastroenteritisI got really unwell again after having gastroenteritis midway through 2021 (20 years old)In context ↗ | Not stated |
| April 2022 | worse flare-ups of symptoms plus chest agitation after Covid-19I wasn’t really sick from the virus itself, but in weeks/months following, I was having worse flare ups of the same symptoms, as well as chest agitationIn context ↗ | Not stated |
| mid-2023 | 10-day hospital stay for observations at his lowest weight, struggling to eat10 days in mid 2023 when I was struggling to eat/at lowest weightIn context ↗ | Moderate |
| 2025-02-14 | symptoms fluctuating but consistently present; studying online, unable to workFrom that point on, my symptoms have been fluctuating, but consistently present, ... I haven’t been able to commit to working during the last couple yearsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Gut problems
chronic abdominal pain (no cause found, considered ‘functional’) and concurrent nausea
In context ↗ - Sleep problems
chronic fatigue, insomnia
In context ↗ - Anxiety & low mood
physical anxiety and possible mild depression/mental anxiety
In context ↗ - Heart symptoms & palpitations
chest agitation (which was checked and cleared by a cardiologist)
In context ↗