ME/CFS too drained to read or play games, stimulants gave no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 6 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
I joined a support group for CFS before
In context ↗ - At worst: Severe
At this point I spend a lot of my time just lying around. My energy is so low that activities like reading a book or playing a video game feel too strenuous.
In context ↗ - Now: No benefit
My condition has worsened recently with some changes to medication, which has exacerbated these issues.
In context ↗ - Began after: nothing they could name
I had a tendency to get sick for really long periods of time even before that though, probably since I was 12.
Summary
Fjord 11575 has had CFS since age 16 and was 22 in 2025, having dropped out of high school and taken only one in-person class since. By autumn 2025 they spent a lot of their time lying around, too drained to read or play games, and said medication changes had worsened things. Several prescribed stimulants made them more lethargic and caused GI issues. By May 2026 they could force a burst of energy but were knocked out for about a week afterwards.
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What they tried
Their words about each treatment
- stimulants · Worse
I got a bunch of different stimulants prescribed and they all pretty much made me feel worse. None of them granted a burst of energy, they generally made me more lethargic and caused GI issues, adderall included.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| September 2025 | worsened after changes to medication; lying around most of the dayMy condition has worsened recently with some changes to medication ... I spend a lot of my time just lying around. My energy is so low that activities like reading a book or playing a video game feel too strenuous.In context ↗ | Severe |
| May 2026 | can force bursts of energy, at the cost of a week knocked outI can generally force a burst of energy without any outside help if I need or want to ... it tends to knock me out for the better part of a week afterwards.In context ↗ | Moderate |
Adverse events
- “My condition has worsened recently with some changes to medication, which has exacerbated these issues.” In context ↗ Made symptoms worse
- Amphetamine salts (Adderall)“I got a bunch of different stimulants prescribed and they all pretty much made me feel worse. None of them granted a burst of energy, they generally made me more lethargic and caused GI issues, adderall included.” In context ↗ Made symptoms worse
- Stimulants (unspecified)“I got a bunch of different stimulants prescribed and they all pretty much made me feel worse. None of them granted a burst of energy, they generally made me more lethargic and caused GI issues, adderall included.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
half the reason I'm in this mess is because I overtaxed myself trying to power through the fatigue
In context ↗ - Anxiety & low mood
Even when I'm not deep in depression there's a sense that I'd rather be dead than have to manage this for the rest of my life.
In context ↗ - Gut problems
they generally made me more lethargic and caused GI issues
In context ↗