Long COVID with POTS symptoms, now close to normal on medication and electrolytes
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I have developed POTS like symptoms few months after catching covid (mild infection).
In context ↗ - Now: Near normal
still on medication, pots is well managed, and I am still at 80% improvement as unfortunately, I do get flare-ups especially if I don't drink enough electrolytes
In context ↗ - Began after: COVID
few months after catching covid (mild infection)
Summary
After a mild COVID infection, Acorn 79581 developed POTS-like symptoms and spent months desperate for answers before being diagnosed with POTS. By April 2023 they had improved about 80%, and by October they had returned to all their old activities, although a small heat-related relapse in June had settled. By January 2024 they remained around 80% improved, with POTS well managed by medication and electrolytes and occasional flare-ups.
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What they tried
What they credit
Also tried
Their words about each treatment
- meds · Helped
still on medication, pots is well managed, and I am still at 80% improvement
In context ↗ - electrolytes / hydration · Helped
I do get flare-ups especially if I don't drink enough electrolytes
In context ↗
Approaches: POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a few months after catching covid | developed POTS-like symptoms after mild COVIDI have developed POTS like symptoms few months after catching covid (mild infection).In context ↗ | Not stated |
| around September | desperate for answers in darkest daysI posted here around September desperate for answersIn context ↗ | Not stated |
| 2023-04-01 | improved around 80%; prescribed meds and gentle exerciseI have improved around 80%.In context ↗ | Mild |
| June 2023 | small relapse due to heatI had a small relapse in June due to the heat but that settledIn context ↗ | Not stated |
| 2023-10-15 | back at 80-90%, returned to old activitiesnow I am again back at 80% sometimes 90% ... I pretty much returned to all my old activities !In context ↗ | Near normal |
| 2024-01-26 | still 80% improved, POTS managed with medication and electrolytesstill on medication, pots is well managed, and I am still at 80% improvementIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
pots is well managed
In context ↗
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