ME/CFS
Outcome unclearNeeds ongoing treatment
Moderate to severe ME/CFS, unable to move much; credits Visible and IV fluids
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Sep 2025
In their words
- Condition: ME/CFS
That's one of the things that upsets me the most about ME/CFS.
In context ↗ - At worst: Severe
for context, I'm moderate/severe
In context ↗
Summary
A Reddit user with ME/CFS described themselves as moderate to severe and unable to move around much, needing IV fluids weekly from a nurse who came to the house. They called the Visible wearable and app the most helpful thing, helping them spot and avoid PEM, and said daily Liquid IV plus the weekly infusions were life-changing for dehydration. They also used a shower chair and ear plugs.
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What they tried
Their words about each treatment
- Visible wearable and app · Helped a lot
I can't praise the Visible wearable enough. I know not everyone will find it helpful, but it's a game changer for me
In context ↗ - Liquid IV · Helped
Also, getting extra hydration. I drink a Liquid IV daily in addition to lots of water
In context ↗ - IV infusions · Helped a lot
get regular IV infusions once a week from a nurse that comes to the house. Life-changing. I'd be in the ER regularly from dehydration otherwise.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS onset, timing not givenThat's one of the things that upsets me the most about ME/CFS.In context ↗ | Not stated | |
| 2025-09-23 | Visible wearable helps avoid PEM; daily Liquid IV and weekly home IV fluids for dehydrationthe most helpful thing has been the Visible wearable and appIn context ↗ | Severe | Symptom-tracking apps and wearables (Visible) |
| 2025-09-24 | still moderate/severe, pacing with the Visible wearablefor context, I'm moderate/severeIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
helped me avoid PEM I don't even know how many times
In context ↗