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Long COVID Moderate → no benefit

Long COVID, too exhausted to sob, still sick despite hydroxyzine

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Apr 2024
In their words
  • Condition: Long COVIDIn addition to having Covid I had all the vaccines ... The frustration of being sick with so many medical conditions
  • At worst: ModerateThe loss of income & relying on public assistance is bad enough ... too exhausted to sob In context ↗
  • Now: No benefitThe frustration of being sick with so many medical conditions is next level shit. In context ↗
  • Began after: COVIDIn addition to having Covid I had all the vaccines including the fall 2023 booster. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

They had COVID and several other medical conditions, lost their income and relied on public assistance. They took hydroxyzine for anxiety, which doubled as an antihistamine and helped them immensely, and had an allergic reaction to Botox injections for migraines that left them laid up with blurred and double vision and five days of migraines. They remained sick, grieving and too exhausted to sob.

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What they tried

Also tried

hydroxyzine· Helpedwriting poetry & song lyrics· HelpedBotox injections· Much worse
Their words about each treatment
  • hydroxyzine · HelpedI’ve been taking hydroxyzine for anxiety with the added benefit of being an antihistamine so it’s has helped me immensely. In context ↗
  • Botox injections · Much worseI was laid up having an allergic reaction to Botox injections (for migraines) with blurred & double vision with 5 days of migraines. In context ↗
  • writing poetry & song lyrics · HelpedWriting poetry & song lyrics helps me channel my feelings. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—COVID infection and ongoing long COVID with other conditionsIn addition to having Covid I had all the vaccines including the fall 2023 booster. In context ↗Not stated
2024-04-24allergic reaction to Botox injections for migrainesI was laid up having an allergic reaction to Botox injections (for migraines) with blurred & double vision with 5 days of migraines. In context ↗Moderate
2024-04-24still sick, grieving and exhaustedI laid there bawling crying but too exhausted to sob. In context ↗Moderate

Adverse events

  • Botox (botulinum toxin)“I was laid up having an allergic reaction to Botox injections (for migraines) with blurred & double vision with 5 days of migraines.” In context ↗ Allergic reaction / anaphylaxis

Symptoms mentioned

Their words about their symptoms

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