ME/CFS
No benefitNeeds ongoing treatment
ME/CFS with severe gastric problems and POTS, no overall benefit; famotidine eased stomach
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
it can take my CFS symptoms from a 6/10 to a 10/10
In context ↗ - Now: No benefit
The symptoms as a whole have been really bad
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Living with CFS and hEDS in 2026, they had severe gastric problems, POTS and frequent rashes while waiting for specialist care. Tattoo removal sessions left them completely tanked for weeks, pushing CFS symptoms from 6/10 to 10/10. Omeprazole did little, loratadine twice daily helped slightly, and famotidine improved their stomach within hours, from vomiting on water to eating normally. Their overall CFS state was not reported to change.
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What they tried
Also tried
Their words about each treatment
- tattoo removal · Much worse
In the weeks after a session I am just COMPLETELY fucking tanked physically, like it can take my CFS symptoms from a 6/10 to a 10/10.
In context ↗ - benzos · Helped
A major reason why I developed a VERY severe benzo addiction that nearly took my life, was that it alleviated my CFS symptoms so immediately.
In context ↗ - omeprazole · No change
I've been on 80mg of omeprazole with little effect for a long time now.
In context ↗ - ORS and compression stockings · Helped
I use ORS pretty significantly day to day, as well as compression stockings, both for POTS/generally feeling less shit.
In context ↗ - loratadine · Helped
Recently added loratadine 2x a day, started to get a tiny bit better
In context ↗ - famotidine · Helped a lot
then added in famotidine and suddenly I got WAY better ... a few hours after first dose I went from vomiting from consuming water to stuffing my face and feeling fine.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2026-07-16 | living with CFS and hEDS, symptoms around 6/10it can take my CFS symptoms from a 6/10 to a 10/10In context ↗ | |
| 2026-07-16 | crashed for weeks after a tattoo removal sessionIn the weeks after a session I am just COMPLETELY fucking tanked physicallyIn context ↗ | |
| 2026-08-30 | stomach much better within hours of adding famotidinesuddenly I got WAY better, like literally a few hours after first doseIn context ↗ | Famotidine (Pepcid) |
| 2026-08-30 | eating normally again; CFS otherwise unchanged, awaiting specialist careI went from vomiting from consuming water to stuffing my face and feeling fineIn context ↗ |
Adverse events
- Benzodiazepines (unspecified)“A major reason why I developed a VERY severe benzo addiction that nearly took my life ... very rapidly building tolerance” In context ↗ Withdrawal problems
- Benzodiazepines (unspecified)“the acute withdrawals are like hell on earth ... mixed with having the flu mixed with seizures” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Gut problems
I'm presently on PPIs for severe gastric issues to very little effect
In context ↗ - Mast cell (MCAS) & allergies
I also take loratadine daily because I get a lot of rashes/hives/random allergic reactions to stuff
In context ↗ - POTS & dysautonomia
I use ORS pretty significantly day to day, as well as compression stockings, both for POTS/generally feeling less shit
In context ↗