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ME/CFS Outcome unclearNeeds ongoing treatment

ME/CFS crashes from overusing legs; creatine to manage them, still tired

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Apr 2025
In their words
  • Condition: ME/CFSI always crash when I overuse my legs. In context ↗
  • At worst: SevereI get tired, but it keeps me out of bed. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A person with ME/CFS described crashing whenever they overused their legs. They said creatine 5 mg every day really helped get them out of a crash and kept them out of bed, though they still got tired. They called something they tried not worth it because it made them more tired. They described creatine as helping them manage crashes.

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What they tried

Also tried

Their words about each treatment
  • fresh fruit · HelpedTry fresh fruit and creatine. Really helps get me out of a crash. In context ↗
  • Creatine · HelpedCreatine. I get tired, but it keeps me out of bed. 5 mg every day. In context ↗
  • Mirtazapine · WorseNot worth it from my experience. Made me more tired. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—ME/CFS onsetI always crash when I overuse my legs. In context ↗Not stated
—in bed without creatineit keeps me out of bed. In context ↗Severe
2025-03-14creatine helped get out of a crashReally helps get me out of a crash. In context ↗ModerateCreatine
2025-04-11mirtazapine made them more tiredMade me more tired. In context ↗ModerateMirtazapine (Remeron)
2025-04-11out of bed on creatine but still tiredI get tired, but it keeps me out of bed. In context ↗ModerateCreatine

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI always crash when I overuse my legs. In context ↗

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