ME/CFS
Outcome unclear
ME/CFS with constant head fullness and pain; strict diet, gluten cut biggest impact
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2024
Summary
A person posting in an ME/CFS forum described four months of constant head fullness and pain and said a few CT scans caused bad reactions, with each taking a week to recover, making them afraid of a contrast brain MRI. Unable to tolerate any medication or supplements, they followed a very strict diet and said cutting out gluten made the biggest impact. Their overall level of function and any wider recovery were not described.
Ask Miruvor AI
What they tried
Also tried
super strict diet· HelpedCT scans with contrast· Worse
Their words about each treatment
- CT scans with contrast · Worse
I had bad reactions after getting a few CT scans and it takes me a week to recover
In context ↗ - super strict diet · Helped
Sooo I just do a super strict diet. ... Cutting out gluten has made the biggest impact
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| March 2024 | constant head fullness and pain began and continued for four monthsMy head has been feeling full and hurting for four months non stopIn context ↗ | |
| before July 2024 | bad reactions after several CT scans, a week to recover each timeI had bad reactions after getting a few CT scans and it takes me a week to recoverIn context ↗ | |
| 2024-07-25 | very strict diet; cutting out gluten gave the biggest improvementSooo I just do a super strict diet. Cutting out gluten has made the biggest impactIn context ↗ | Elimination diets (other) |
Adverse events
- “I had bad reactions after getting a few CT scans and it takes me a week to recover” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
My head has been feeling full and hurting for four months non stop
In context ↗