ME/CFS
Severe → much better
Unable to get out of bed with ME/CFS, now much better between mild and moderate
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
I used to be really severe what I couldn't get out of bed
In context ↗ - At worst: Severe
I used to be really severe what I couldn't get out of bed
In context ↗ - Now: Much better
I'm between mild and moderate. I used to be really severe what I couldn't get out of bed, I slowly got better
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Hawk 88625 described being really severe with ME/CFS, unable to get out of bed, then slowly improving until she could use a cane and manage pacing as a stay-at-home mother. After her husband's affair and divorce she became a daycare worker, working 40-hour weeks and caring for two small children while maintaining a house by herself. She placed herself between mild and moderate and worried about waking up unable to move.
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What they tried
Also tried
Their words about each treatment
- pacing · Not said
I slowly got better and was able to use a cane to get around and manage pacing.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | really severe, could not get out of bedI used to be really severe what I couldn't get out of bedIn context ↗ | Severe |
| — | slowly got better, used a cane and managed pacing at homeI slowly got better and was able to use a cane to get around and manage pacingIn context ↗ | Moderate |
| 2024-07-06 | between mild and moderate, working 40-hour weeks and running a house aloneI'm between mild and moderate ... work 40 hr weeks and maintain a house by myselfIn context ↗ | Mild |