ME/CFS
Severe → no benefitIll for 14 months
Suspected ME/CFS with POTS, in bed 80-90% of time, revision surgery brought no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 14 months
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
Note I'm not diagnosed yet but like, I have confirmed POTS and everything else lines up to point to ME too.
In context ↗ - At worst: Severe
Currently mod-severe, in bed 80-90% of the time.
In context ↗ - Now: No benefit
Started mild in the aftermath of surgery and have only gotten worse in the last year
In context ↗ - Began after: COVID
I think getting COVID the month before was a much bigger factor, and surgery just compounded on top of it.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Beech 87707 became ill in late 2024 after sex reassignment surgery, with a COVID infection the month before. It started mild and worsened over the following year, partly through pushing themselves early on; by February 2026 they were in bed 80-90% of the time, with confirmed POTS and suspected ME/CFS. A revision surgery about 11 months later went smoothly with no baseline deterioration.
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What they tried
Also tried
Their words about each treatment
- pushing myself a lot early on · Worse
have only gotten worse in the last year, but a lot of that is because I pushed myself a lot early on
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late 2024 | fell ill after sex reassignment surgery, with COVID the month beforeStarted mild in the aftermath of surgery and have only gotten worse in the last yearIn context ↗ | Mild |
| 2026-02-02 | worsened over the year, partly from pushing herself early on; in bed 80-90% of the timeCurrently mod-severe, in bed 80-90% of the time.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have confirmed POTS and everything else lines up to point to ME too
In context ↗ - Post-exertional malaise
a lot of that is because I pushed myself a lot early on
In context ↗