ME/CFS
No benefitIll for 14 months
ME/CFS after an iron infusion, now on medication with no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 14 months
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Iron infusion. I got hypophosphatemia and haven’t been the same since.
In context ↗ - Now: No benefit
I got hypophosphatemia and haven’t been the same since.
In context ↗ - Began after: injury or surgery
Iron infusion. I got hypophosphatemia and haven’t been the same since.
In context ↗
Summary
Coast 15075 dates their ME/CFS to a Ferinject iron infusion in August 2025 that caused hypophosphatemia, saying they haven't been the same since and were not warned of the risk. By October 2026 they had started a medication at 1.5 mg, planned to rise to 4.5 mg, and reported only strange dreams and otherwise feeling fine. No improvement in the illness itself is described.
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What they tried
Their words about each treatment
- Iron infusion (ferinject) · Much worse
Iron infusion. I got hypophosphatemia and haven’t been the same since.
In context ↗ - LDN · Not said
I started at 1.5mg. I’ve had some weird dreams but otherwise I’ve been fine.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| August 2025 | iron infusion (Ferinject) causing hypophosphatemia; never the same sinceIron infusion. I got hypophosphatemia and haven’t been the same since.In context ↗ |
| 2026-10-26 | still not the same since the infusion; LDN started, tolerating itI got hypophosphatemia and haven’t been the same since.In context ↗ |
Adverse events
- Low-dose naltrexone“I’m usually pretty med sensitive and I started at 1.5mg. I’ve had some weird dreams but otherwise I’ve been fine.” In context ↗ Side effects
- Iron infusion / ferritin repletion“Iron infusion. I got hypophosphatemia and haven’t been the same since.” In context ↗ Refeeding or deficiency problems
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I’ve had some weird dreams but otherwise I’ve been fine.
In context ↗