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ME/CFS Moderate → no benefit

Years of an off feeling blamed on anxiety, now with ME/CFS and no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2022
In their words
  • Condition: ME/CFSOmg just realized I’m not an anxious wreck, just burnt out beyond belief In context ↗
  • At worst: ModerateI had managed to run myself a bath yesterday morning and that was super enjoyable. But after getting out, trying to put on lotion, clothes, I started getting that weird “anxious” feeling In context ↗
  • Now: No benefitjust burnt out beyond belief In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

The user had felt a strange 'off' feeling for years, which they and others had blamed on anxiety. After a bath and light chores they recognised the feeling that followed as burnout rather than anxiety, and anxiety coping tricks made it worse. Lying down with a sleep mask and ear plugs in a warm, quiet room eased it each time, and they said they finally had half a clue what their body was telling them.

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What they tried

Also tried

Their words about each treatment
  • usual anxiety coping things · WorseTried all my usual anxiety coping things but that just seemed to make it worse In context ↗
  • sleep mask, ear plugs and lying down in a dark quiet room · HelpedPut on my sleep mask, turned the air up, put in some ear plugs and just laid down not thinking ... for like an hour and the feeling started to subside a bit In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—years of a strange 'off' feeling blamed on anxietyfor I don’t even know how many years In context ↗Not stated
2022-09-19after a bath and chores, resting in the dark and quiet eased the crashjust laid down not thinking ... the feeling started to subside a bit In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseafter getting out, trying to put on lotion, clothes, I started getting that weird “anxious” feeling In context ↗

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