ME/CFS
Severe → no benefit
Unable to work with ME/CFS; amphetamines and caffeine became less effective
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
I'm not sure I have PEM so then I'm not sure if I qualify for the condition of "CFS".
In context ↗ - At worst: Severe
once the situation is over, I get back to bed. ... I lost the ability to work
In context ↗ - Now: No benefit
Amphetamines with caffeine have been the only thing that helped so far ... after a while, they got severely less effective
In context ↗ - Began after: nothing they could name
its been like this since I know myself
In context ↗
Summary
Bluebell 63377 described lifelong difficulty pushing and by 2023 could push for only 30 minutes to 3 hours under emergency pressure, then returned to bed. They had held a full-time job for a few years but lost the ability to work and described 100% disability. Amphetamines with caffeine and an NMDA antagonist were the only things that helped, but they became severely less effective after about 30–45 days.
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What they tried
Also tried
Their words about each treatment
- Amphetamines · Helped
Amphetamines with caffeine have been the only thing that helped so far ... they got severely less effective after a short period of around ~30-45 days.
In context ↗ - NMDA Antagonist · Helped
NMDA antagonist is good for stimulant tolerance in general. ... In my case they remove the short term tolerance development, but permatolerance stays intact.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ill since childhood, no onset identifiedits been like this since I know myselfIn context ↗ | Not stated |
| 2023-07-30 | in bed most of the day, can push for 30 minutes to 3 hours only under emergency pressure; lost the ability to workonce the situation is over, I get back to bed ... I lost the ability to workIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I lost so much hope of anything that I don't even care much of getting thrown to the street
In context ↗