ME/CFS tiredness, somewhat better after lower expectations and walking only as able
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2020
In their words
- Condition: ME/CFS
sometimes doing a bit more exercise gives me more energy (+the extra oxygen to the brain), but then of course often it doesn't
In context ↗ - At worst: Mild
Early on in lockdown, I noticed I was a lot more tired than usual but I wasn't doing any more than before
In context ↗ - Now: Somewhat better
It's been a bit better since then, but mainly because I've lowered my expectations.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Starling 23300, posting in r/cfs, described feeling a lot more tired than usual during the 2020 COVID-19 lockdown without doing more. Their therapist encouraged them to go easier on themselves and said comparing their energy to pre-pandemic levels may not be helpful. Things had been a bit better since, mainly because they lowered their expectations and walked only as much as they could handle.
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What they tried
Also tried
Their words about each treatment
- walks · Helped
I try to go for walks because I know that helps me physically and mentally, but not more than I can handle
In context ↗ - not push myself more than I'm comfortable · Helped
just go easy on myself and not worry too much, but also not push myself more than I'm comfortable
In context ↗ - therapist · Not said
I talked about it with my therapist and she said that a lot of people she's been speaking to have also reported feeling more tired
In context ↗
Approaches: Exercise and activity · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early in lockdown, 2020 | energy envelope narrowed in lockdown; more tired than usualEarly on in lockdown, I noticed I was a lot more tired than usual but I wasn't doing any more than beforeIn context ↗ | Mild | |
| 2020-06-17 | a bit better after lowering expectations and walking only as much as they could handleIt's been a bit better since then, but mainly because I've lowered my expectations.In context ↗ | Mild | Pacing and the energy envelope |
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