ME/CFS
No benefit
ME/CFS and long COVID ongoing; every therapy tried made things temporarily worse
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2024
In their words
- Now: No benefit
I'm still long hauling
In context ↗ - Began after: COVID
I'm still long hauling and my T levels including free T are better than before the virus contraction.
In context ↗
Summary
Reports ongoing long COVID as well as CFS. A one-hour session with Neurosym caused a couple of hours of severe anxiety and paranoia, then derealization that lasted almost a week, and they were too frightened to try it again. They said every therapy they try for their CFS seems to make things temporarily worse. In July 2024 they were still long hauling, and their testosterone levels were better than before the virus.
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What they tried
Also tried
Their words about each treatment
- Neurosym · Worse
an hour long session with Neurosym gave me terrible anxiety and a sense of paranoia that lasted for couple of hours ... a derealization that was only gone after almost a week
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | viral infection, followed by long haulingI'm still long hauling and my T levels including free T are better than before the virus contraction.In context ↗ | |
| 2024-06-02 | anxiety, paranoia and a week of derealization after one Nurosym sessionan hour long session with Neurosym gave me terrible anxiety and a sense of paranoia that lasted for couple of hoursIn context ↗ | Vagus nerve stimulation |
| 2024-07-12 | still long haulingI'm still long haulingIn context ↗ |
Adverse events
- Vagus nerve stimulation“an hour long session with Neurosym gave me terrible anxiety and a sense of paranoia that lasted for couple of hours and then a derealization that was only gone after almost a week” In context ↗ Mood or psychiatric effects