ME/CFS
Severe → somewhat better
Moderate ME/CFS with PEM, pushed closer to severe, somewhat better but not at baseline
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2025
In their words
- Condition: ME/CFS
found more ME/CFS community
In context ↗ - At worst: Severe
I went from moderate to closer to severe after that alone.
In context ↗ - Now: Somewhat better
Still not back at the baseline i had before that specialist
In context ↗
Summary
They were moderate with ME/CFS symptoms including PEM before working with a listed specialist who told them to push past their limits, which took them from moderate to closer to severe. They said they were still not back at their pre-specialist baseline when they wrote in 2025. They had blamed themselves until they found a trauma-informed therapist and more of the ME/CFS community.
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What they tried
Also tried
Their words about each treatment
- listed specialist from this subreddit (told to push past my limits) · Much worse
i got sicker & retraumatized by one of the listed specialists from this subreddit ... I went from moderate to closer to severe after that alone.
- trauma informed therapist · Not said
Thought i was to blame until i got a trauma informed therapist, and found more ME/CFS community
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset; moderate with PEMI went from moderate to closer to severe after that aloneIn context ↗ | Moderate |
| — | worsened after a nervous-system specialist told them to push past their limits | Severe |
| 2025-05-31 | still not back to their pre-specialist baselineStill not back at the baseline i had before that specialistIn context ↗ | Severe |
Adverse events
- Everyday exercise and activity“Just to observe what happens if i let myself push past what i thought my limits are. I went from moderate to closer to severe after that alone.” In context ↗ Made symptoms worse
- Everyday exercise and activity“Oh yeah i got sicker & retraumatized by one of the listed specialists from this subreddit actually” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
likely in my head and not PEM
In context ↗