Bedbound with ME/CFS, now somewhat better with an SSRI and cromolyn
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Since my vaccine injury and devolping MECFS (bedbound) following that
In context ↗ - At worst: Very severe
devolping MECFS (bedbound) following that ... Von very severe zu severe
- Now: Somewhat better
Bin durch SSRI deutlich stabiler geworden. Von very severe zu severe. Sonst hat bisher nicht viel geholfen. ... more stable, more energy
- Began after: a vaccination
Since my vaccine injury and devolping MECFS (bedbound) following that
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
After a vaccine injury they developed ME/CFS and became bedbound, with broken, unrefreshing sleep, vivid dreams and night sweats. An SSRI made them clearly more stable, taking them from very severe to severe, and cromolyn helped a lot. Low-dose tirzepatide (0.25 mg) brought more stability and energy, and later microdoses brought a bit more stability; KPV was just being introduced. They remained severely affected.
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What they tried
What they credit
Also tried
Their words about each treatment
- SSRI · Helped
Bin durch SSRI deutlich stabiler geworden. Von very severe zu severe. Sonst hat bisher nicht viel geholfen.
In context ↗ - cromolyn · Helped
It helped me a lot too! But I Wonder if I should take more.
In context ↗ - tirzepatide (tirzep) · Helped
.25 mg , more stable, more energy
In context ↗ - KPV · Not said
today just introduced 100mcgs kpv
In context ↗ - neck collar · Not said
Those collars are so uncomfortable cant wear it for more than an hour
In context ↗
Approaches: GLP-1 drugs · Antihistamines & MCAS · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | vaccine injury followed by ME/CFS, bedboundSince my vaccine injury and devolping MECFS (bedbound) following thatIn context ↗ | Very severe | |
| 2025-02-27 | much more stable on an SSRI, from very severe to severeBin durch SSRI deutlich stabiler geworden. Von very severe zu severe.In context ↗ | Severe | Antidepressants (unspecified) |
| 2025-12-28 | cromolyn helped a lotIt helped me a lot too!In context ↗ | Severe | Cromolyn (Gastrocrom, Nalcrom) |
| 2026-06-08 | tirzepatide 0.25 mg: more stable, more energy.25 mg , more stable, more energyIn context ↗ | Severe | Tirzepatide (Mounjaro, Zepbound) |
| 2026-07-13 | microdose tirzepatide keeps them a bit more stable; started KPVtirzep but i tolertate only microdoses. makes me bit more stable.In context ↗ | Severe | Tirzepatide (Mounjaro, Zepbound) |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I never had a good night of sleep. I wake up multiple times, have crazy dreams, dry mouth, often sweat and never feel well-rested next day
In context ↗
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