ME/CFS
Moderate → much betterIll 9 years before improving or writing
Very sick with ME/CFS, now mild and able to do most things with rest
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 years
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
My CFS symptoms mostly dissipated after I caught covid.
In context ↗ - At worst: Moderate
I was very sick in 2016 after dropping out 3rd year of school. I slept a lot, we brought down the bed to the dining room so I could interact more with my family.
In context ↗ - Now: Much better
My cfs is mild now, im able to do most things but need a lot of rest afterward.
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Comet 69341 was very sick in 2016, dropped out of school and took 18 months to readjust to leaving home, eventually taking one community college class. Catching COVID mostly dissipated the CFS symptoms for about three months, then a slow six-month worsening; repeated COVID exposures at a school job each time left them feeling better. By 2025 they described their CFS as mild, able to do most things with a lot of rest afterward.
Ask Miruvor AI
What they tried
Also tried
Adderall· Helpedhoney or sugar packet in tea· Helpedcaffeine (diet Pepsi or black tea)· HelpedStevia· Worseguanfacine· Not saidpaxlovid· Not said
Their words about each treatment
- Adderall · Helped
Adderall just helps me focus to sleep better and think. But I get so tired when it wears off.
In context ↗ - guanfacine · Not said
I take guanfacine now to manage that crash but it's still like hitting a brick wall most days.
In context ↗ - paxlovid · Not said
I was given paxlovid for the 2 serious infections where I had a raging fever.
In context ↗ - honey or sugar packet in tea · Helped
Literally can make or break me, either I'm in bed shaking or I'm actually able to function.
In context ↗ - caffeine (diet Pepsi or black tea) · Helped
Caffeine works for me too, like a half a can of diet Pepsi or black tea can make me feel a bit better, enough to get out of bed
In context ↗ - Stevia · Worse
Stevia makes me so sick though! Will puke later haha
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2016 | very sick after dropping out of third year of school; slept a lot with the bed moved into the dining roomI was very sick in 2016 after dropping out 3rd year of school. I slept a lot, we brought down the bed to the dining room so I could interact more with my family.In context ↗ |
| 18 months later | slowly got back to one class at community college; took 18 months to readjust to leaving homeslowly got back to where I could take 1 class at community college. But it took 18 months to readjust to leaving home.In context ↗ |
| after catching covid | CFS symptoms mostly dissipated after covid; felt pretty good for about three monthsMy CFS symptoms mostly dissipated after I caught covid. ... The first improvement was for about 3 months |
| after those three months | slowly worsened over another six months; pre-covid times had major trouble just walking around the blockslowly worsened again over another 6 months ... pre-covid times where I had major trouble just walking around the blockIn context ↗ |
| 2025-01-25 | CFS mild now; can do most things but needs a lot of rest afterwardsMy cfs is mild now, im able to do most things but need a lot of rest afterward.In context ↗ |
Adverse events
- Amphetamine salts (Adderall)“Adderall just helps me focus to sleep better and think. But I get so tired when it wears off.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
im able to do most things but need a lot of rest afterward
In context ↗