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ME/CFS Severe → relapsedIll 11 years before improving or writing

ME/CFS after glandular fever, back to full-time work then relapsed and housebound

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
11 years
Last post
Jun 2018
In their words
  • Condition: ME/CFSsevere anxiety on top of cfs symptoms In context ↗
  • At worst: SevereI spent all summer in bed and never really recovered. In context ↗
  • Now: RelapsedHad a good few years where I worked full time and seemed to bounce back with CBT and antidepressants but in October last year I had a nervous breakdown and everything came back again. In context ↗
  • Began after: glandular fever or EBVGot glandular fever (mono) in 2007 at the end of my first year of college.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Trail 87487 developed ME/CFS after glandular fever in 2007, spent that summer in bed and had to drop out of college the next year with severe anxiety. After a few years of full-time work following CBT and antidepressants, a nervous breakdown in October 2017 brought the fatigue and anxiety back. By 2018 they were housebound, unable to leave home, had lost their job and home, and were waiting for disability payments.

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What they tried

Their words about each treatment
  • CBT · HelpedHad a good few years where I worked full time and seemed to bounce back with CBT and antidepressants In context ↗

Approaches: CBT & mindset · Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset2 y4 y6 y8 y10 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2007glandular fever (mono); spent the summer in bedGot glandular fever (mono) in 2007 ... I spent all summer in bed and never really recovered. In context ↗Severe
second year of collegesevere anxiety on top of CFS; had to drop outTried to go back for the second year but developed severe anxiety on top of cfs symptoms and had to drop out. In context ↗Not stated
a good few yearsworked full time and seemed to bounce backHad a good few years where I worked full time and seemed to bounce back with CBT and antidepressants In context ↗Near normalCBT and psychotherapy
October 2017nervous breakdown; everything came backin October last year I had a nervous breakdown and everything came back again. In context ↗Severe
2018housebound; waiting for disabilityIt’s tough trying to get over my anxiety and agoraphobia when I have chronic fatigue and physically can’t leave the house. In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodtrying to get over my anxiety and agoraphobia In context ↗

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