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Long COVID Severe → somewhat betterIll 2 years before improving or writingNeeds ongoing treatment

Long COVID with tremors and racing heart, somewhat better with beta blockers

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Mar 2024
In their words
  • Condition: Long COVIDI have had long Covid for 27 months. In context ↗
  • At worst: Severeif I wasn’t on my med and supplement regimen, I’d probably still be in bed a good deal of the time. In context ↗
  • Now: Somewhat betterI am still not fully well, but if I wasn’t on my med and supplement regimen, I’d probably still be in bed a good deal of the time. In context ↗
  • Began after: COVIDI have had long Covid for 27 months. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Horizon 83646 had had long COVID for 27 months by March 2024, with dysautonomia-related tremors and vibrations, a heart rate up to the low 200s and difficulty using their hands. Beta blockers helped most, easing the panic they felt when their heart raced within about 30 minutes, alongside medications and supplements. They were still not fully well; without the regimen they said they would probably be in bed much of the time.

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What they tried

Also tried

meds and supplements· Helpedbeta blockers· Helped
Their words about each treatment
  • meds and supplements · HelpedI am on meds and supplements ... if I wasn’t on my med and supplement regimen, I’d probably still be in bed a good deal of the time In context ↗
  • beta blockers · Helpedthe most helpful for tremors and vibrations were beta blockers ... felt much better about 30 minutes after taking a beta blocker In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetlong COVID beganI have had long Covid for 27 months. In context ↗Not stated
—dysautonomia with tremors and racing heart; in bed much of the time before medicationMy heart rate would go up to high 100s to low 200s and the tremors started. In context ↗Severe
2024-03-19still not fully well but much improved on beta blockers, meds and supplementsI am still not fully well, but if I wasn’t on my med and supplement regimen, I’d probably still be in bed a good deal of the time. In context ↗ModerateBeta-blockers (unspecified)

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI had horrible tremors and vibrations that were related to my dysautonomia. In context ↗
  • Heart symptoms & palpitationsMy heart rate would go up to high 100s to low 200s and the tremors started. In context ↗
  • Muscle weaknessI had a hart time using my hands. In context ↗
  • Anxiety & low moodI felt like I was having a massive panic attack when my heart raced In context ↗

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