Unable to work with ME/CFS, now somewhat better despite relapses
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
Then everything gradually fell apart after I developed a rare illness.
In context ↗ - At worst: Moderate
He no longer loved the woman who couldn't work anymore
In context ↗ - Now: Somewhat better
once I slowly started recovering after those first six months of complete despair ... Yes, I still had health problems and relapses.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A woman who developed a rare illness while in a long relationship describes the first six months as complete despair, when she could no longer work and her relationship broke down. She slowly started recovering after those six months but still had health problems and relapses. No treatment is described; her partner had emotionally left the relationship five months into her illness.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | developed a rare illnessThen everything gradually fell apart after I developed a rare illness.In context ↗ | Not stated |
| first six months | complete despair, unable to work, waiting for a diagnosisonce I slowly started recovering after those first six months of complete despairIn context ↗ | Moderate |
| after those first six months | slowly started recovering | Mild |
| 2026-06-29 | still having health problems and relapsesYes, I still had health problems and relapses.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I became anxious, constantly trying to seem
In context ↗