ME/CFS
Moderate → no benefit
ME/CFS with 1-2 hours of activity a day; tracking symptoms, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- At worst: Moderate
it's too damn hard when you have a threshold of about 1-2 hours a day
In context ↗ - Now: No benefit
I hope to manage PEM better and avoid it, but it's too damn hard when you have a threshold of about 1-2 hours a day.
In context ↗
Summary
Maple 44057 has ME/CFS with a baseline allowing only about 1-2 hours of activity a day. Mildly overdoing it brought about a day of PEM; going well over their limits could mean more than a week of PEM. Symptom tracking helped them recognize when PEM was coming and how long it usually lasts; they hoped to manage and avoid it better, and no improvement was reported.
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What they tried
Also tried
Their words about each treatment
- rest when in PEM / stopping before tired · Helped
usually the minute I'm in PEM, I take a lot of rest
In context ↗ - symptom logging / tracking · Helped
tracking symptoms gave me a lot of insight in recognizing when PEM is coming and now long it usually lasts
In context ↗ - sleep · Helped
Sleeping really helps me too, but I gotta calm down a bit before I can, lol.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2025-11-07 | ME/CFS with PEM after overexertion; mild overexertion gives about a day of PEM, going well over limits more than a weekif I go way over my limits, I can be in PEM for more than a weekIn context ↗ | Moderate |
| 2026-06-04 | tracking symptoms to recognise PEM; activity threshold of about 1-2 hours a dayit's too damn hard when you have a threshold of about 1-2 hours a dayIn context ↗ | Moderate |