ME/CFS
Moderate → somewhat better
ME/CFS: could not walk far before pulse hit 100, somewhat better with daily exercises
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
if I do any chores where my heart rate is above 90 for more than a 5 minutes I am getting closer to pem territory
In context ↗ - At worst: Moderate
I cannot walk far (puls is quickly at 100)
In context ↗ - Now: Somewhat better
I have gotten the medication I need at the moment to feel decent at the moment - but I am far from cured
In context ↗
Summary
Using an electric wheelchair when outside, they could not walk far before their pulse reached 100, and chores that kept their heart rate above 90 for more than five minutes brought them toward PEM, with overheating and sweating the clearest warning. Daily standing-up-from-the-floor exercises increased their strength, and medication left them feeling decent at the moment but far from cured; sleep medication helps them fall asleep.
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What they tried
Also tried
sleep medication· Helpedrelaxing game on my phone (spelling bee)· Helpedmedication· Helpedstanding up from the floor only using my muscles· Helped
Their words about each treatment
- sleep medication · Helped
What helps me is also sleep medication. It makes me sleepy at the metaphorical push of a button.
In context ↗ - relaxing game on my phone (spelling bee) · Helped
What also helps me is playing a relaxing game on my phone (mine is spelling bee) until I get tired on those days.
In context ↗ - medication · Helped
I have gotten the medication I need at the moment to feel decent at the moment - but I am far from cured.
In context ↗ - standing up from the floor only using my muscles · Helped
I did it once or twice every day and I noticed my strength increased. ... But I cannot walk far (puls is quickly at 100)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS; onset and duration not described, needs an electric wheelchair for outingsI cannot walk far (puls is quickly at 100) and if I do any chores where my heart rate is above 90 for more than a 5 minutes I am getting closer to pem territory.In context ↗ | Moderate | |
| 2026-10-08 | medication made them feel decent, still far from curedI have gotten the medication I need at the moment to feel decent at the moment - but I am far from cured.In context ↗ | Moderate | |
| 2026-10-27 | strength increased with daily standing-up exercises; still cannot walk far and near PEM with choresI have tried standing up from the floor only using my muscles. I did it once or twice every day and I noticed my strength increased.In context ↗ | Moderate | Everyday exercise and activity |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I do any chores where my heart rate is above 90 for more than a 5 minutes I am getting closer to pem territory
In context ↗ - Heart symptoms & palpitations
I cannot walk far (puls is quickly at 100)
In context ↗ - Temperature regulation
But overheating is the biggest indicator for me. When I am starting to sweat during chores, I can be sure pem is coming.
In context ↗ - Sleep problems
I know the issue of not being able to fall asleep after a good day.
In context ↗