ME/CFS
Outcome unclearNeeds ongoing treatment
Sleeping badly with ME/CFS, tried hydrocortisone, not sleeping at writing
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- May 2023
In their words
- Condition: ME/CFS
I have not slept well before being diagnosed, or after being put on HC
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sequoia 21499 had taken 10 mg of hydrocortisone daily for over a year by May 2023 and had slept badly before being diagnosed and after starting it. When their mother died unexpectedly they raised the dose to 15 mg for six weeks. Dropping the dose to get more than an hour of sleep brought a crash, but they then slept well for four days before going back up, and were not sleeping at all at the time of writing.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- HC · Helped
I've been on 10mg of HC for over a year ... Take HC feel great, but can't sleep, don't take a much, feel awful but can sleep.
In context ↗ - supplements · Not said
as well as many supplements and glandulars to help
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| this past weekend (before 2023-05-18) | crashed after dropping their hydrocortisone dose to get more than an hour of sleep, then slept well for four daysI dropped down my HC this past weekend bc I was desperate for more than an hour of sleep, resulting in a crash… but slept great for 4 days until I needed to go back up.In context ↗ |
| 2023-05-18 | back up on hydrocortisone, not sleeping at all; feels great on the higher dose but cannot sleepI’ve been on 10mg of HC for over a year ... not sleeping at all now. ... Take HC feel great, but can’t sleep, don’t take a much, feel awful but can sleep.In context ↗ |
Adverse events
- Hydrocortisone / cortisol“Take HC feel great, but can’t sleep, don’t take a much, feel awful but can sleep.” In context ↗ Insomnia from treatment
- Hydrocortisone / cortisol“I dropped down my HC this past weekend bc I was desperate for more than an hour of sleep, resulting in a crash” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I have not slept well before being diagnosed, or after being put on HC… not sleeping at all now.
In context ↗