Severely ill with ME/CFS, now a bit better and able to do more
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
I was able to recover a bit from severe to moderate
In context ↗ - At worst: Severe
recover a bit from severe to moderate
In context ↗ - Now: Somewhat better
I was able to recover a bit from severe to moderate
In context ↗
Summary
A Reddit user in r/cfs described being severely ill, with sexual thoughts and feelings gone for about three years. They recovered a bit from severe to moderate, kept daily activity very low and could tell their limits more easily, and after about four years were able to do much more than at diagnosis. Overdoing it still left them down for weeks, and the improvement was described as recovering a bit.
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What they tried
What they credit
Their words about each treatment
- keep daily activity very low · Helped
I also keep daily activity very low and have been able to tell my limits much easier
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The dashed part: the story doesn’t say when. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | became ill and was severely affectedLuckily I was able to recover a bit from severe to moderate.In context ↗ | Severe |
| 2023-07-21 | able to do much more than at diagnosis after about four yearstook probably about 4 years for me but I’m now able to do much more then when I was first diagnosedIn context ↗ | Moderate |
| 2025-02-17 | improved from severe to moderate, keeping daily activity very low, returning to datingI also keep daily activity very low and have been able to tell my limits much easierIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I over do it I’m usual down for a few weeks after :(
In context ↗
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