ME/CFS
Mild → no benefitIll for 19 months
Extreme fatigue and long sleep with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 19 months
- Last post
- May 2018
In their words
- Condition: ME/CFS
anyone have similar experience with mono/ Epstein Barr and cfs?
In context ↗ - At worst: Mild
I sleep 12 hours a day minimum, I have slept for up to 20 hours at one time.
In context ↗ - Now: No benefit
the fatigue has definitely been there and I have felt unwell overall
In context ↗ - Began after: glandular fever or EBV
A little over a year ago I came down with mono-like symptoms ... found out that I DID actually have mono
Summary
Plover 43873 fell ill in 2016 with a mono-like illness that blood tests later confirmed as Epstein-Barr, and has had extreme fatigue ever since, sleeping 12 hours a night minimum and sometimes 20. About a year later the mono symptoms returned and they wondered whether it was a mono flare or CFS. They were struggling at school and had been on many antidepressants for the fatigue.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- antibiotic · Not said
I think I was put on some antibiotic
In context ↗ - many antidepressants (lexapro and wellbutrin) · Not said
have been on many antidepressants to try and fix it ... I am on lexapro and wellbutrin, and they have definitely given me night sweats
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2016 | came down with a mono-like illnessA little over a year ago I came down with mono-like symptomsIn context ↗ | Mild |
| 2017-11-20 | extreme fatigue, sleeping up to 20 hours, struggling at schoolI sleep 12 hours a day minimum, I have slept for up to 20 hours at one time.In context ↗ | Mild |
| 2017-11-20 | mono symptoms returnedI am experiencing the same mono symptoms again.In context ↗ | Mild |
Adverse events
- Escitalopram (Lexapro), Bupropion (Wellbutrin)“I am on lexapro and wellbutrin, and they have definitely given me night sweats, so they may be playing a role in this.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I sleep 12 hours a day minimum, I have slept for up to 20 hours at one time.
In context ↗ - Flu-like symptoms
I have felt unwell overall
In context ↗ - Headaches & migraine
My other symptoms (headache, sore throat) were not constant throughout the past year
In context ↗