ME/CFS
Severe → somewhat betterIll 12 years before improving or writing
So ill with ME/CFS a doctor came to them, now somewhat better and still naps
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 12 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I've had ME for 12+ years now.
In context ↗ - At worst: Severe
I've also been so ill from ME that the Dr had to come to me
In context ↗ - Now: Somewhat better
These days I'm well enough to go to the Dr to get my shots
In context ↗
Summary
Bluebell 94979 has had ME for more than 12 years. They have been so ill that a doctor had to come to them. By late 2026 they were well enough to go to the doctor for their yearly flu shot and COVID booster, and neither has made them worse or caused a crash. They still take naps when needed and might not feel better after them.
Ask Miruvor AI
What they tried
Their words about each treatment
- flu shot · No change
I take a flu shot and covid booster every year. I don't get worse from that.
In context ↗ - napping · Helped
When my body tells me I need a nap, I take a nap. ... if I don't nap when I need it I definitely feel worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | ME beganI've had ME for 12+ years now.In context ↗ | Not stated |
| — | too ill to leave home; doctor had to come to themI've also been so ill from ME that the Dr had to come to me.In context ↗ | Severe |
| 2026-10-07 | well enough to attend doctor appointments for yearly flu shot and COVID boosterThese days I'm well enough to go to the Dr to get my shotsIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I might not feel better after, but if I don't nap when I need it I definitely feel worse.
In context ↗