Long COVID with heart pain and no desire to live, somewhat better on cytokine-test plan
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 9 months
- Last post
- Feb 2022
In their words
- Condition: Long COVID
I'm a vaccine long hauler
In context ↗ - Now: Somewhat better
Since then I've found treatment and it's nine months and counting, but I think it's getting better.
In context ↗ - Began after: a vaccination
So I've never had Covid, but I'm a vaccine long hauler.
Summary
Vaccine long hauler since June 2021, never having had COVID, who described the phase as a dysfunctional prison with no desire to live and heart pain. Standard blood panels and EKGs found nothing though they rated themselves at 60%. In September 2021 they began a doctor's cytokine-test-based treatment plan that helped but did not cure them; by February 2022, nine months in, they felt it was getting better.
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What they tried
Also tried
Their words about each treatment
- Dr. Bruce Patterson's treatment plan · Helped
the one I've started which has helped but not cured me since I just started
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2021 | became a vaccine long hauler after the shot; whole body a dysfunctional prison, no desire to liveI went through a phase similar to yours in June last year after the shot.... whole body a dysfunctional prison, no desire to liveIn context ↗ | Not stated |
| September 2021 | at 60% of normal, started Dr. Patterson's cytokine-test-based treatment plan which had begun to helpit's the one I've started which has helped but not cured me since I just startedIn context ↗ | Mild |
| February 2022 | nine months in on treatment, says it is getting better but not curedit's nine months and counting, but I think it's getting betterIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
except I have the dreaded heart pain
In context ↗ - Anxiety & low mood
no desire to live
In context ↗