Miruvor
ME/CFS Very severe → near-fullIll for 10 yearsNeeds ongoing treatment

Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)

Björn Sjöberg (relayed by ChookityPop)forums.phoenixrising.mePublished Nov 2021

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill for
10 years
Published
Nov 2021

Summary

Started Otezla in autumn 2018, which "made a big difference" within a month, then added valganciclovir, ritonavir and Isentress from January 2019. Had been confined to a dark room, wheelchair-bound and unable to tolerate sound or light after a 2016 crash; the turnaround began "exactly" on his 40th birthday in May 2019. By November 2021 he was working full-time as a gymnastics teacher, going to the gym, swimming, and had taken beach holidays, "not felt so fit since he turned 30." Improvement had held for over two years but required staying on the antivirals as maintenance therapy.

Read it in their words

forums.phoenixrising.me

Read the original ↗ Archived copy

What they credit

AntiviralsTenofovir / antiretroviralsValcyte / valganciclovir

Similar stories

  • Antiretrovirals to treat MECFS

    Substantial ME/CFS healthrising.org Oct 2016

    Truvada (emtricitabine/tenofovir), taken for about three months before adding Valtrex and Valcyte on an ongoing basis. Illness duration and severity beforehand are not stated, though functioning was self-rated at 5 out of 10. Improved to 7 out of 10 on…

  • Good results from valtrex and valcyte combo

    Partial ME/CFS ModerateIll 5.5 years forums.phoenixrising.me Oct 2016

    Added Valtrex 1g/day, then Valcyte 450mg twice daily a month later, on top of about a year already on Truvada, for CFS present "5 to 6 years" but only diagnosed 3-4 months earlier; self-rated baseline severity "5 or 6 out of 10," never bedridden but with…

  • Treatments. Yes, they do exist.

    Partial ME/CFS encephalogirl.substack.com Jul 2025

    In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…

  • Improved on triple anticoagulant therapy, considering adding tenofovir

    Partial Long COVID ModerateIll 2 years forums.phoenixrising.me Jun 2024

    Five months into apixaban, clopidogrel and aspirin (aspirin eventually raised to 100mg/day) for Long Covid presenting as moderate ME/CFS of over two years' standing, improvements appeared around day 40: ability to tolerate screens "increased manyfold," eye…