ME/CFS
Severe → somewhat better
In bed much of the time with ME/CFS, now holding stable after researching methods
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
managed to land me with POTS, ME/CFS, and IST
In context ↗ - At worst: Severe
A few supplements for the ME/CFS that work a little bit, but not nearly enough to allow me out of bed much.
In context ↗ - Now: Somewhat better
I'm genuinely holding stable now thanks to all that, when before I was in a bit of a free fall spiral downwards.
In context ↗ - Began after: stress or burnout
Apparently if the event is traumatic enough, I get a new autoimmune disease.
Summary
After a traumatic abuse event they developed POTS, ME/CFS and IST. Supplements helped the ME/CFS only a little and did not get them out of bed much, and they described a previous free-fall decline. In May 2026 they said researching methods of combating the illness had helped, and that they were now holding stable rather than spiralling downward.
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What they tried
Also tried
supplements· HelpedAI· Helped
Their words about each treatment
- supplements · Helped
A few supplements for the ME/CFS that work a little bit, but not nearly enough to allow me out of bed much.
In context ↗ - AI · Helped
mine helps me research methods of combating this illness ... I'm genuinely holding stable now thanks to all that
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | traumatic abuse event followed by autoimmune POTS, ME/CFS and ISTThis last event managed to land me with POTS, ME/CFS, and IST.In context ↗ | Severe |
| 2026-01-18 | in bed much of the time despite supplements, still trialing thingsA few supplements for the ME/CFS that work a little bit, but not nearly enough to allow me out of bed much.In context ↗ | Severe |
| 2026-05-27 | holding stable instead of spiralling downward after researching the illness with an AI chatbotI'm genuinely holding stable now thanks to all that, when before I was in a bit of a free fall spiral downwards.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
land me with POTS, ME/CFS, and IST
In context ↗