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ME/CFS No benefit

ME/CFS with PEM and a sliding baseline, pacing brought no improvement

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Oct 2026
In their words
  • Condition: ME/CFSthe depression gets a small win without the PEM hangover In context ↗
  • Now: No benefitThe baseline slide is what makes it maddening, you recalibrate and then the goalposts move again. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Posting in an ME/CFS forum in October 2026, Osprey 87595 described pacing an active mind against post-exertional malaise, using a kitchen timer with a pet game, dry audiobooks and occasional embroidery to avoid a PEM hangover. They said the depression got a small win when they stayed within their limits, but that their baseline kept sliding and the goalposts moved again.

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What they tried

Also tried

Their words about each treatment
  • pacing · Not saidWith the pet game I set a kitchen timer across the room so I have to physically lean over to shut it off In context ↗

Symptoms mentioned

Their words about their symptoms

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