ME/CFS
Mild → no benefitIll for 3 years
Mild to moderate ME/CFS and severe POTS with fainting, no improvement, still declining
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
I’m a 21 year old college student with mild to moderate ME/CFS
In context ↗ - At worst: Mild
I currently can’t attend school full time due to my fatigue.
In context ↗ - Now: No benefit
I really want to break out of this nasty cycle so I can hopefully maintain some sort of baseline instead of the decline i’ve been on
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 21-year-old college student had had mild to moderate ME/CFS for over three years, plus hEDS, POTS and MCAS, and had been stuck in a crash-and-recover cycle with a gradual decline. Severe POTS caused frequent fainting despite lifestyle changes and medication, and fatigue kept them from attending school full time. They were asking about a wheelchair for the walk to class and hoped to hold a baseline rather than keep declining.
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What they tried
Also tried
medication· Not saidlifestyle changes· Not said
Their words about each treatment
- medication · Not said
despite lifestyle changes and medication, I still pass out quite often
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS began; entered a crash-and-recover cycleI’ve been in a crash & recover cycle for the last 3 yearsIn context ↗ | Not stated |
| 2026-05-18 | still crashing and recovering, on a gradual decline, cannot attend school full timeI currently can’t attend school full time due to my fatigue.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve been in a crash & recover cycle for the last 3 years
In context ↗ - POTS & dysautonomia
My POTS is pretty severe and despite lifestyle changes and medication, I still pass out quite often.
In context ↗ - Mast cell (MCAS) & allergies
i also have the trifecta (hEDS, POTS, and MCAS).
In context ↗