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ME/CFS Mild → no benefitIll for 3 years

Daily headaches and low energy with ME/CFS, no relief from Botox or meds

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Sep 2023
In their words
  • Condition: ME/CFSI've had headaches just after covid hit ... low energy too In context ↗
  • At worst: Mildlow energy too but have to work so I have to In context ↗
  • Now: No benefitI've taken botox shots for about a year too did nothing really In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A father of three reported daily headaches that began just after COVID-19 hit, though he had never had COVID-19 or head trauma. The headaches were constant and present on waking, and he also had low energy but had to keep working. Botox shots for about a year did nothing, and he remained in pain while taking vitamin D, toomamax, Esgic and sumatriptan.

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What they tried

Their words about each treatment
  • botox shots · No changeI've taken botox shots for about a year too did nothing really In context ↗
  • vitamin d · Not saidRt now Im taking vitamin d toomamax In context ↗
  • Esgic · Not saidEsgic,,sumatriptan In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
just after covid hitdaily headaches beganI've had headaches just after covid hit In context ↗Mild
2023-09-21still daily headaches and low energy, workingI have headaches everyday all day I go to bed with a headache and wake up with one. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineI have headaches everyday all day I go to bed with a headache and wake up with one. In context ↗

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