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ME/CFS Moderate → no benefit

Moderate ME/CFS lifelong, still moderately ill after COVID shots and antibiotics

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Apr 2025
In their words
  • Condition: ME/CFSRegardless of whether this clears my entire CFS, or gets me to those incredible energy levels again In context ↗
  • At worst: ModerateA moderate sufferer all my life. In context ↗
  • Now: No benefitKilling staph aureus dead (verified 2x) has done little. In context ↗
  • Began after: nothing they could nameA moderate sufferer all my life. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A lifelong moderate ME/CFS sufferer, they had only two days of feeling well: one after a first AstraZeneca COVID shot, one during a second COVID infection, each lasting a day; a Moderna booster did not repeat it. Antibiotics for a throat staph infection cleared their hearing problem and ADHD but did little for the CFS. Elderberry or acyclovir caused mild Herx-like reactions; they remained moderately ill.

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What they tried

Their words about each treatment
  • My 1st COVID shot, Astra Zeneca (later Moderna booster) · Helped a lotIt seriously felt like I could run through walls. Lasted a day. ... Moderna's, did NOT yield that effect In context ↗
  • targeted antibiotic · HelpedDuring the antibiotic course, both my hearing problem and my ADHD cleared. ... Killing staph aureus dead (verified 2x) has done little.
  • Elderberry · WorseElderberry or acyclovir give me mild Herx-like reactions. In context ↗
  • vaccinated against VZV · Not saidhave got vaccinated against VZV (the virus causing chickenpox AND shingles) lately In context ↗
  • avoiding most oils in favour of MCT oil · Not saidFixed by avoiding most oils in favour of MCT oil In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—lifelong moderate ME/CFSA moderate sufferer all my life. In context ↗Moderate
—one day of high energy after first AstraZeneca COVID shotIt seriously felt like I could run through walls. Lasted a day. In context ↗Near normalCOVID vaccination as treatment
—one day of high energy during second COVID infectionI could not believe the amount of energy I had. ... Lasted a day. In context ↗Near normal
2025-02hearing problem and ADHD cleared during antibiotic course for throat staphDuring the antibiotic course, both my hearing problem and my ADHD cleared. In context ↗ModerateAntibiotics (unspecified)
2025-04-14still moderately ill; clearing staph did little for CFSKilling staph aureus dead (verified 2x) has done little. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms

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