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Long COVID Moderate → relapsedIll 1 year before improving or writing

Long COVID improved with a naturopathic doctor, then relapsed after overexertion

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
1 year
Last post
Aug 2026
In their words
  • Condition: Long COVIDI had this at the beginning of my long covid journey but no longer experience this. In context ↗
  • At worst: ModerateHave you tried a shower chair? It made a little difference for me. In context ↗
  • Now: RelapsedI had pretty much fully recovered (or thought I had), over exerted myself physically and mentally, and am now still trying to undo the damage. In context ↗
  • Began after: COVIDI had MAB with my initial COVID infection (that caused LC). In context ↗
Read from 27 of their posts and comments; links to the 15 this page draws on

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Summary

Long COVID after a COVID infection; they began improving at the 12-month mark but a major regression nine months later, which they link to overexertion, took them far back. They credit a naturopathic doctor with much of their improvement and were still not fully recovered in early 2024. By 2026 they had improved enough to make art again, but remained constantly tired with ME/CFS, POTS and MCAS and still lost ground after overdoing it.

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Asking aboutHare 93398’s story

What they tried

Also tried

naturopathic doctor· Helped a lotmonolaurin· Helpedthings to regulate my nervous system· HelpedADHD meds· Helpedshower chair· HelpedMAB· No change
Their words about each treatment
  • MAB · No changeI had MAB with my initial COVID infection (that caused LC). ... It certainly didn’t help nor did it prevent anything, since I still ended up with LC lol. In context ↗
  • naturopathic doctor · Helped a lotI wouldn’t be where I am without consulting a naturopathic doc. I’m still not totally recovered but I’ve improved so much. In context ↗
  • monolaurin · HelpedMy naturopathic doctor has me on 600 mg of monolaurin to get my mono count down In context ↗
  • l-lysine · HelpedConsider taking l-lysine to keep the EBV virus from replicating again. I’m on both. I think they’re helping as well. In context ↗
  • physical therapy · Helped a lotWhat got rid of most of my POTS symptoms was physical therapy and doing things to regulate my nervous system. In context ↗
  • ADHD meds · HelpedYes, treating my ADHD was huge in terms of how I felt anxiety wise and what not. It’s been hard without the meds! In context ↗
  • limiting screen time and scrolling · HelpedLimiting my screen time was important. ... was contributing to crashes In context ↗
  • shower chair · HelpedHave you tried a shower chair? It made a little difference for me. In context ↗

Approaches: Amino acids and carnitine · Pacing · Physiotherapy and rehab

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsetLong COVID after initial COVID infectionI had MAB with my initial COVID infection (that caused LC). In context ↗
12 month markstarted improvingI started improving at the 12 month mark. In context ↗
9 months latermajor regression after overexerting physically and mentally9 months later, had a major regression and took a ton of steps back. In context ↗
2024-01-25large improvement while seeing a naturopathic doctorI’m still not totally recovered but I’ve improved so much. In context ↗
2026-05-11improved enough to create art and music againFor a period of time, I couldn’t create. I’ve improved enough that I can In context ↗
2026-08-17still constantly tired and losing ground after overdoing itjust when I think I’ve improved and things may be getting better, it’s 10 steps back In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI had pretty much fully recovered (or thought I had), over exerted myself physically and mentally, and am now still trying to undo the damage. In context ↗
  • POTS & dysautonomiaI’m sick of POTS. In context ↗
  • Mast cell (MCAS) & allergiesI’m sick of MCAS. In context ↗
  • Vision problemsat the beginning of this, I had weird vision issues In context ↗
  • Anxiety & low moodSometimes I don’t know how much more I can take. In context ↗

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