ME/CFS
No benefitIll for 14 months
A year of constant malaise with ME/CFS, medicines brought no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 14 months
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
I think I have PEM and my doctors are puzzled
In context ↗ - Now: No benefit
I've been feeling constant malaise for over a year ... nothing works
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in r/cfs described feeling constant malaise for over a year, like being poisoned or having dirty water in the bloodstream, with random episodes lasting from 20 minutes to hours. They suspected PEM, and said blood tests, heart, lung and stomach checks found nothing wrong. Several medicines, including ones for anxiety, had not worked. They asked for advice; no treatment or outcome was reported.
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What they tried
Also tried
multiple medicine, even stuff for anxiety· No change
Their words about each treatment
- multiple medicine, even stuff for anxiety · No change
They have given me multiple medicine, even stuff for anxiety but nothing works.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | onset of constant malaise, cause not identifiedI've been feeling constant malaise for over a yearIn context ↗ |
| 2025-07-21 | still having random episodes of severe malaise, asking for adviceLike if someone pressed a button to torture me every day at random times.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
I've been feeling constant malaise for over a year
In context ↗ - Post-exertional malaise
I think I have PEM
In context ↗