ME/CFS with POTS, a little better after clinic prescriptions and GLP-1
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
Haha me too, and I’ve still got muscle spasms.. sending love!
In context ↗ - Now: Somewhat better
It hasn't made me functionally that much better but it's been the greatest quality of life improvement by FAR
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user in the Netherlands with ME/CFS and POTS said a specialist clinic helped most by providing prescriptions, costing 950 euros for the first six months then 25 euros monthly. A drug taken twice daily reduced POTS symptoms and heart-rate spikes but did not make them functionally much better; occasional low-dose medication made them feel normal without allowing much more activity. GLP-1 treatment later helped them stop stress eating and improved their sanity.
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What they tried
What they credit
Also tried
Their words about each treatment
- dr Ruud Vermeulen clinic · Helped a lot
I'm there and it's helped me the most, it's mostly just for prescriptions and not much other guidance
In context ↗ - ivabradine · Helped
It hasn't made me functionally that much better but it's been the greatest quality of life improvement by FAR, 2x5mg daily.
In context ↗ - benzodiazepines · Helped
I take them very occasionally and low dose when I really need rest or am emotionally overwhelmed.
In context ↗ - GLP-1s · Helped a lot
GLP-1s saved me and my sanity. ... Now that I’m on it it’s just so much easier to eat healthy and less.
In context ↗
Approaches: GLP-1 drugs · POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2026-02-10 | ivabradine reduced POTS symptoms and heart-rate spikesI can stand up for some water or go to the bathroom and my heart rate will settle down normally, instead of being spiked for 30-60 minutes.In context ↗ | Moderate | Ivabradine |
| — | became more severe and stress eating wrecked them mentally and physicallyWhen I got more severe I started stress eating to cope and it absolutely wrecked me mentally and physically.In context ↗ | Moderate | |
| 2026-05-28 | GLP-1 helped stop stress eating and improved mental stateGLP-1s saved me and my sanity.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have POTS and it has reduced symptoms such as heartrate, fatigue significantly.
In context ↗ - Heart symptoms & palpitations
my heart rate will settle down normally, instead of being spiked for 30-60 minutes.
In context ↗
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