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ME/CFS Moderate → no benefit

ME/CFS fatigue, PEM and workout crashes, bedbound for days, no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
more than 5 years
Last post
Dec 2024
In their words
  • Condition: ME/CFSwhen I had mild ME / CFS In context ↗
  • At worst: ModerateI’m convinced that pushing myself during the mild stage made me go from mild to moderate. In context ↗
  • Now: No benefitI would do anything if I could go back to when I had mild ME / CFS. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

First symptoms were fatigue, PEM and nausea while still going to the gym. Workouts brought flu-like crashes, at first bedbound for days, which became longer and more severe; the last gym session five years before the post caused a two-week crash. They believed pushing during the mild stage moved them from mild to moderate ME/CFS.

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What they tried

Their words about each treatment
  • gym workouts · Much worseAfter working out, I would have these crashes where I felt like I had the really bad flu. ... Last time I went to the gym was five years ago and I was in the fetal position death bed flu sick PEM crash for two weeks. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—First symptoms while still going to the gymmy first symptoms were fatigue, PEM and nausea. I would go to the gym often. In context ↗
—Crashes after workouts, bedbound for daysAfter working out, I would have these crashes where I felt like I had the really bad flu. The first couple of times I was bed bound for days. In context ↗
—Crashes became longer and more severeThe crashes started lasting longer and became even more severe. In context ↗
five years before the postLast gym visit and two-week crashLast time I went to the gym was five years ago and I was in the fetal position death bed flu sick PEM crash for two weeks. In context ↗
2024-12-26Still moderate after pushing during the mild stageI’m convinced that pushing myself during the mild stage made me go from mild to moderate. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemy first symptoms were fatigue, PEM and nausea In context ↗
  • Flu-like symptomsI felt like I had the really bad flu In context ↗

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Asking aboutOwl 43003’s story

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