ME/CFS
No benefitIll for 5 years
Fatigued all the time with ME/CFS; low-carb gave no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 5 years
- Last post
- Apr 2023
In their words
- Condition: ME/CFS
CFS to me is a continuum, not a binary thing.
In context ↗ - Now: No benefit
I have not found anything that brought much relieve other than pacing, listening to your body and adapting your lifestyle to what is and not to what is supposed to be.
In context ↗ - Began after: glandular fever or EBV
I got it from an EBV infection about 5 years ago.
In context ↗ - Says they never had: Neuropathy & tingling
no neuropathy though
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sandpiper 90653 wrote in 2023 that they had been ill for about five years, dating it to an EBV infection. They felt awful and fatigued all the time, and doctor's appointments found nothing. Pacing, listening to their body and adapting their lifestyle gave the only relief; a three-week low-carb attempt brought no improvement.
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What they tried
Also tried
Their words about each treatment
- pacing · Helped
I have not found anything that brought much relieve other than pacing, listening to your body and adapting your lifestyle
In context ↗ - keto · No change
I've also tried to implement keto at some point but I did not manage to go all the way and just stayed low-carb for three weeks. I felt no improvement from that
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| about 2018 | Illness began after an EBV infectionI got it from an EBV infection about 5 years ago.In context ↗ |
| 2023-04-02 | Still feeling awful and fatigued all the time, no diagnosis foundI just feel awful and fatigued all the time and all I have are doctor's appointments in which they find nothing.In context ↗ |