Long COVID
Mild → somewhat betterNeeds ongoing treatment
Long COVID: burning head pain, severe gut issues; somewhat better with diet and pacing
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2023
In their words
- At worst: Mild
I can now read novels (with larger print) for 1-2 hours without problems, and I can watch some TV shows on my TV. I still cannot tolerate my laptop at all
In context ↗ - Now: Somewhat better
I have made some gains - I can now read novels (with larger print) for 1-2 hours without problems
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Developed long COVID with constant burning head pain for five to six months plus severe gut problems and screen sensitivity. Diet changes shifted the pain into intermittent flares, and pacing helped. By mid-2023 they could read novels for an hour or two and watch some TV, but still could not use a laptop, and the gut problems stayed bad. They received a second round of Botox.
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What they tried
Also tried
Their words about each treatment
- ppi · Worse
I was on a ppi for reflux prior and found it made things worse so I stopped
In context ↗ - diet change · Helped
diet change - can't seem to digest meat, high fat, high fiber ... noticed a big improvement
In context ↗ - pepcid · Helped
pepcid as needed ... actually alleviates the head pressure a bit
In context ↗ - pacing myself · Helped
I've been pacing myself with vision therapy, reading, tv time, walks/exercise and it has definitely improved.
In context ↗ - vision therapy · Not said
pacing myself with vision therapy, reading, tv time, walks/exercise
In context ↗ - domperidone · Not said
Have not found a good treatment yet besides sometimes pepcid and domperidone.
In context ↗ - botox · Worse
I just got my second round of botox and I'm curious if I react as bad as last time, or if things will improve!
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023-03-12 | head pain shifted from constant to intermittent after diet change and pacingThings that helped shift the pain from constant (~6 mo) to intermittentIn context ↗ | Mild | Elimination diets (other) |
| 2023-05-18 | able to read novels 1-2 hours and watch TV; still cannot tolerate laptopI can now read novels (with larger print) for 1-2 hours without problemsIn context ↗ | Mild | |
| 2023-06-28 | still limited by intermittent burning head pain and bad gut; second round of BotoxI still cannot tolerate my laptop at allIn context ↗ | Mild |
Adverse events
- Proton pump inhibitors (unspecified)“I was on a ppi for reflux prior and found it made things worse so I stopped” In context ↗ Made symptoms worse
- Botox (botulinum toxin)“I just got my second round of botox and I'm curious if I react as bad as last time, or if things will improve!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
My gi tract is still very bad and also contributes to headaches.
In context ↗ - Light & noise sensitivity
if I look at a computer/under fluorescent lights for too long
In context ↗