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Long COVID RelapsedIll 2 years before improving or writing

Long COVID with throat tightness, improved on inhaler and antihistamines then relapsed

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
2 years
Last post
Nov 2023
In their words
  • Condition: Long COVIDlong hauling for almost 2 years In context ↗
  • Now: RelapsedWas better for a while and a very busy week sent me back to square one. In context ↗
  • Began after: COVIDwhen I got sick at Xmas
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A 42-year-old woman fell ill with long COVID at Christmas 2021. She had throat tightness and suspected MCAS and tried oral steroids, steroid and albuterol inhalers, antihistamines, Pepcid, ibuprofen and vitamins; the steroid inhaler and antihistamines helped. She improved for a while, but a very busy week in autumn 2023 sent her back to square one. By November 2023 she was seeing a functional medicine doctor, still ill almost two years on.

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What they tried

Their words about each treatment
  • oral steroids · Not saidI’ve been on two diff courses of oral steroids In context ↗
  • steroid inhaler · HelpedPulmonologist saw inflammation and bronchial thickening and prescribed a steroid inhaler. It has helped me In context ↗
  • albuterol inhaler · Not saidalbuterol inhaler In context ↗
  • humidifier · Not saidusing a humidifier In context ↗
  • vitamins · Not saidtaking vitamins In context ↗
  • Pepcid · Not saidPepcid, Claritin, ibuprofen In context ↗
  • Claritin · HelpedI believe the antihistamines help as well In context ↗
  • ibuprofen · Not saidClaritin, ibuprofen In context ↗
  • Gabapentin · HelpedI was just prescribed this and have only taken it once. I think it helped In context ↗
  • clonazepam · Not saidI’m scared to take it with my clonazepam or antihistamines In context ↗
  • functional medicine · HelpedBUT I have had luck with functional medicine In context ↗
  • diet experimentation · Not saidI still have flare ups, maybe due to diet. Still trying to experiment there. In context ↗

Approaches: H1 antihistamines · Alternative therapies · Other drugs and medicines

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
Christmas 2021fell ill with long COVID at ChristmasDouble vaxxed 42F when I got sick at Xmas. In context ↗
April 2022steroid inhaler and antihistamines helpedIt has helped me, and I believe the antihistamines help as well. In context ↗
2023-10-25a very busy week sent her back to square oneWas better for a while and a very busy week sent me back to square one. In context ↗
2023-11-17triaged approach through functional medicine, GI and pulmonologyI have had luck with functional medicine In context ↗

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsI have the throat tightness as well, it’s awful. In context ↗
  • Mast cell (MCAS) & allergiesI’m almost certain I have MCAS In context ↗
  • Post-exertional malaiseWas better for a while and a very busy week sent me back to square one. In context ↗

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