ME/CFS
Severe → near normalIll 3 years before improving or writing
ME/CFS with half a year of bed rest, now almost normal most days
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
We have to grieve the loss of our old lives and its something normal people can't begin to understand. ... My illnesses haven't subsided, by any means, they've actually gotten worse.
In context ↗ - At worst: Severe
3 years ago I spend half of the year in bed rest.
In context ↗ - Now: Near normal
This year I ran half a marathon. I work full time (soon adding another part time job), workout 3-5 times a week, go on walks, and go out/hang out with friends. ... I do still flare, especially after an intense workout or busy day.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Flint 59321 described being ill for about three years, with half a year of bed rest three years ago. By 2022 they could not run a mile without flaring, and by July 2023 they were working full time, exercising three to five times a week, and had run a half marathon. They still flared after intense workouts or busy days and said their underlying illnesses had worsened, though they managed them well enough to feel almost normal most days.
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What they tried
Their words about each treatment
- bed rest · Not said
3 years ago I spend half of the year in bed rest
In context ↗ - workout 3-5 times a week · Not said
This year I ran half a marathon. ... workout 3-5 times a week, go on walks
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 (3 years before July 2023) | half a year of bed rest3 years ago I spend half of the year in bed rest.In context ↗ | Severe |
| 2022 (last year) | could not run a mile without flaringLast year I couldn't even run a mile without flaring.In context ↗ | Mild |
| 2023-07-14 | working full time, exercising, ran a half marathon, still flares after intense activityThis year I ran half a marathon. I work full time ... workout 3-5 times a weekIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I do still flare, especially after an intense workout or busy day.
In context ↗