ME/CFS
Somewhat better
ME/CFS at its worst on many medications, somewhat better after reducing them
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Mar 2023
In their words
- Now: Somewhat better
significantly improved reducing that number and altering the specific meds slowly over time
In context ↗
Summary
Living with CFS, they spent long periods on clonidine SR, estazolam and eszopiclone for sleep and reported no side effects; eszopiclone was their favourite and saved them many times. During the worst of their CFS they were on a polypharmacy regimen, and they later improved significantly by reducing the number of medications and altering the rest slowly.
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What they tried
Also tried
reducing the number of medications· Helped a lotClonidine SR· HelpedEszopiclone (Lunesta)· Helped
Their words about each treatment
- Clonidine SR · Helped
Clonidine SR .2-.4mg ... it was usually really good at helping me stay asleep through the night
In context ↗ - Eszopiclone (Lunesta) · Helped
Personally I took 1mg for 3 years and switched to Clonidine fairly easily
In context ↗ - reducing the number of medications · Helped a lot
significantly improved reducing that number and altering the specific meds slowly over time
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | worst of their CFS while on a polypharmacy regimenI say this as someone who was on a polypharma regimine while experiencing the worst of my CFSIn context ↗ |
| 2023-03-12 | significant improvement after cutting down and changing medicationssignificantly improved reducing that number and altering the specific meds slowly over timeIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
The three I have taken over long periods of time didn't have any side effects
In context ↗